cancer, costs, dehydrated, disabled mummy, exhausted, family, head and neck cancer, help, hemiglossectomy, homework, hospital, hypothyroid, infection, late effects of head and neck cancers, life, live, medicine, money, motherhood, mouth cancer, MRSA, name tags, nametags4u, nametags4u.co.uk, PEG feeding., Radiotherapy, reccomendation, scouts, side effects of radiotherapy, support, surgery, suvivor, tongue cancer, treatment, voice, Whats radiotherapy like, young carers, youth club
well as title says really? and I know its not just the kids it G as well.
When I’m in hospital or unwell it effects the whole house which is one of the many reason I have being in hospital, I can see the effect sit having and yet am powerless to help. there is the emotional side the practical side and the financial side (drinks snacks and dreaded parking/petrol etc.)
D is now 5 but is very much a mummy’s girl at heart although se wraps daddy round her little finger! and gets away with murder when he’s on duty lol and K is 11, which is a funny age as he’s entering puberty so has all these emotions and has no idea how to handle them – (although now I’ve typed that it sounds like something someone would use to describe all men lol).
We have found that the kids find quick visits easier to deal with, so we manufacture scenarios where they will pop and see mum on the way to, or from X. This means they don’t get bored and or upset and its nice and upbeat and they can perhaps come twice in a day even if for only 20 minutes at a time set up . Also with D being so active she simply can’t stay still enough and for some reason she is ALWAYS hot in hospitals (perhaps a bit stressed) and a 5 when your hot you take clothes off, which obviously isn’t ideal lol ! !!
K on the other hand goes really quite and doesn’t really know how to handle it as he wants to help but knows he’s out of his depth. Oh that reminds me we were referred to a young carers group and we had a meeting with someone before Christmas and he’s been accepted and this will give him a great place to meet like minded kids who understand what its like to have a mum with additional needs or disability’s or illness’s, they have a youth club and activities. also we have signed him up for scouts – and as long as we can sort out some transport home for him that should be great too (its at the same time as my college course so I will have the car)
That reminds me I taught the kids to sign a song for Christmas and they performed it for Christmas assembly at school and here is a little video if Daisy practicing before the event and here’s a picture of us after we did it with our Head Teachers award stickers
I am so proud of my children – Christ they aren’t perfect but neither am I and who wans robots – they are kind and caring and are fantastic to be around and regardless of my tubes scars and all that goes with it they love me and support me in their own way.
one last thing I wanted to share was this really cool mummy cheat – you know what itrs like naming and labelling kids school uniform its a bloody nightmare right? WRONG !!!! I have found a company who not only deliver super super quick but they also have they best products
these name tags are amazing you can attach them to everything from shoes to swim towels and school bags even inside uniform and they wash and wash and wash, then there’s the name stickers and again theses wash and wash and wash – D actually outgrew something before the sticker faded !! They also have a ink stamp so you can just stamp your child’s name on their uniform – no sewing or ironing on labels (they never stayed on anyways. I think these are so so good and as a mum who has to think about what energy I have and how to use it on bad days using a stamp rather than having to fiddle and sew etc. is perfect – its literally the perfect product (no I haven’t been paid to say this !) oh and I even use the stamp on husbands uniform as its just a surname !
Here is a link to the website and Facebook
Anyways its nearly midnight so I will schedule thus to post in the morning and I will update about my MaxFax appointment tomorrow xx
lots of love and thank you to those who follow