Well the start of a plan. Since my last post I stopped eating due to the pain, so when I went to the doctors he made some phone calls and was clearly very persuasive as I had my dietitian on the phone before I had even left the doctors, well nearly, I had a voice… Continue reading We have a plan….
I'm at my wit's end, I'm almost 12 months post radiotherapy and 14 most post surgery (half tongue removed and reconstructed with free flap forearm). I keep having blips, here's a few: - Auto immune reaction in mouth causing extensive ulceration. - Sickness returning on and off - I STILL have my peg - My… Continue reading 1 year post radiotherapy and struggling
This have most definitely been eventful lately, where to start. Choir, well week 2 I couldn't go as I barely had a voice, I'm too sure why but at least once a week my voice goes croaky and sometimes just disappears. Week 3 i turn up and almost instantly i regret it. Other than a… Continue reading BBQ
We are holding a BBQ to raise money for Macmillan and Cancer Research UK. On the 31st May 2014 from 2pm it's at our house in Marham, PE33 9PDD. We are wanting a big doo so if you fancy it message me at email@example.com. Also we are looking for raffle prizes if anyone wants to donate x… Continue reading An Invitation
Being a better person ?? Since my cancer I have had an urge, a need to make things better. I think it's the "live life to its fullest" type theory. But what is a better life? Is it being more popular having more friends ? Is it doing crazy things like sky diving ? Or… Continue reading Being a Better Person.
Well friday, after seeing the palliative care doctor (not end if life, but symptom control), who added as drug to my syringe driver and gave me the ok to go home. This is Sarah the Dr I saw and she was THE kindest doctor, she was amazing and I even loved her dress (it was from… Continue reading As weak as a kitten…
I have been thinking about this a lot recently and it was dragged kicking and screaming to the surface today, when we took the children to MacDonalds and I say and cried - not coz i love the food, although i did love a chicken sandwich meal, but I cried because I cannot eat - my last actual meal was… Continue reading What my furture holds
I can honestly say I have only cried a handful of times since diagnosis and that includes when i was told and even after surgery ... see i don't like crying, i worry i wont stop or i will loose control. but tonight i am in a lot of pain, my back isn't liking the bed that i lay on for… Continue reading So … I cried
Same view same staff same faces, except the newbys who hold their diagnosis letter and their schedule of treatments as if its proof they should be here... its obvious many are panicing possibly imagining big cancer fighting lazer beams whereas its a big polo with beeps and clicks.. you want feel it... or see it....… Continue reading And repeat…..
If you've just been told your going to have radiotherapy - i hope this helps - i have lost of pictures to help- this is my treatment for tongue cancer - but i understand this is the general set up for most Head and Neck Cancers! This is the room and the table you like… Continue reading Radiotherapy Explained