I became a patient, a statistic, a member of a club you NEVER ask to join yet can NEVER leave. I've spoken of my depression and anxiety before, but I've never found a way to put it in to words. I'll try, once you're in the club you're playing Russian roulette with Schrödinger’s cancer, it's… Continue reading 730 days Since..
Once you have had cancer you will always be a cancer patient but there is hope.
This is something that has intrigued me for a long while. I find it interesting that you can, for example reply "ok" in a text it can be taken so may ways. OK, ie fine whatever I hate you right now!!!! OK, ie no issues, I'm happy with that thanks. OK, ie lethargic don't care… Continue reading Sensing tone in the written word
Well, this bloody radiotherapy I had has well and truly buggered me up. Currently I'm fighting off another bout of cellulitis and mouth sores and mucusitus. Needless to say, but i will say anyway, I'm in so so much pain. Imagine having salt on a ulser now make that ulser up to 4 mm wide… Continue reading Another bump in the road!!
Well its 2 weeks since we started our 'plan' of night feeds etc, it's going ok as long as I'm taking my anti sickness, so could be worse. I've not managed much in the way of mls, and 1ml is 1 calorie, here's an example of a few days feed, 450mls 600 mls 320mls and… Continue reading Summer Holidays
Well the start of a plan. Since my last post I stopped eating due to the pain, so when I went to the doctors he made some phone calls and was clearly very persuasive as I had my dietitian on the phone before I had even left the doctors, well nearly, I had a voice… Continue reading We have a plan….
I'm at my wit's end, I'm almost 12 months post radiotherapy and 14 most post surgery (half tongue removed and reconstructed with free flap forearm). I keep having blips, here's a few: - Auto immune reaction in mouth causing extensive ulceration. - Sickness returning on and off - I STILL have my peg - My… Continue reading 1 year post radiotherapy and struggling
This have most definitely been eventful lately, where to start. Choir, well week 2 I couldn't go as I barely had a voice, I'm too sure why but at least once a week my voice goes croaky and sometimes just disappears. Week 3 i turn up and almost instantly i regret it. Other than a… Continue reading BBQ
We are holding a BBQ to raise money for Macmillan and Cancer Research UK. On the 31st May 2014 from 2pm it's at our house in Marham, PE33 9PDD. We are wanting a big doo so if you fancy it message me at firstname.lastname@example.org. Also we are looking for raffle prizes if anyone wants to donate x… Continue reading An Invitation
Being a better person ?? Since my cancer I have had an urge, a need to make things better. I think it's the "live life to its fullest" type theory. But what is a better life? Is it being more popular having more friends ? Is it doing crazy things like sky diving ? Or… Continue reading Being a Better Person.
I wrote this first bit on the 9th of April Things are a bit crazy atm, I'm back in hospital with issues to do with my thyroid (you might remember my thyroid glands were destroyed by the radiotherapy) or possibly something entirety different. Rewind to last week, I was doing great managing a bit… Continue reading Up and down like a yoyo …. but it all comes together. Video included.
MY FIRST EVER POST Things were looking up !! then it all went to …… FEBRUARY 15, 2013 MY CANCER AND ME Im not sure where to start so i guess i will start with the begining of this year !!!On the 4th Jan 2013 I recall having a huge headache so bad i put… Continue reading One year since diagnosis, This is an exact copy of my first post
I haven't blogged for ever and I keep getting asked if I am ok as I haven't blogged - I am ok - in my own way ! I thought I would start with a quick run down of whats been going on I am seeing Mr Moss 4 weekly and at that appointment I… Continue reading Recovery? (arm pic but not as gross anymore)
Well friday, after seeing the palliative care doctor (not end if life, but symptom control), who added as drug to my syringe driver and gave me the ok to go home. This is Sarah the Dr I saw and she was THE kindest doctor, she was amazing and I even loved her dress (it was from… Continue reading As weak as a kitten…
I have been thinking about this a lot recently and it was dragged kicking and screaming to the surface today, when we took the children to MacDonalds and I say and cried - not coz i love the food, although i did love a chicken sandwich meal, but I cried because I cannot eat - my last actual meal was… Continue reading What my furture holds