I asked some head and neck patients how they were affected socially emotionally and physically - short and longer term.
Hello everyone, thank you for finding my blog if you're new here. I'm Stephanie I have Ehlers-Danlos syndrome and I have a history of tongue cancer which was treated successfully but unfortunately left me with several legacies. I have a feeding tube and I have have issues swallowing speaking. I also have a funky sounding… Continue reading I fell Down the Stairs … #218
Hi guys I hope everyone's doing well. I havent the in the blog-post in quite while, but I really wanted to share some things with you.. some super great and some pretty crappy..I'm writing this from Portugal I'm on holiday with my husband and children as well as my parents and my dad's mum, my… Continue reading Portugal Holiday – The Ups and Downs #217
Your face My initial facial palsy Your face is who you are - and if this changes, which is often the case in head and neck cancers, you're left with not feeling like yourself - you feel unable to identify with the person looking back at you from the mirror. For me the worst was… Continue reading Physical and psychological effects of Head and neck cancers #212
So yesterday i had my scan, it was at high Wycombe hospital. the night before i was struggling with feeling stressed and found myself frantically cleaning which id a default i go to when I'm feeling stressed and over whelmed, its a distraction techniques as I'm obviously worried for the result. Its not helped that… Continue reading Scan done – just waiting for results !
Well as you all know I now live in Aylesbury area and getting to see Mr Moss is a nightmare its 2 plus hours and with my travel sickness, which is now so severe I have to carry sick bags at all times and take 2 different ant sickness meds - which sometimes work but… Continue reading Meeting my new head and neck surgeon, nerve wracking doesn’t come close! & I have a lump in my neck
well as title says really? and I know its not just the kids it G as well. When I'm in hospital or unwell it effects the whole house which is one of the many reason I hate being in hospital, I can see the effect it is having and yet am powerless to help. There… Continue reading Mummy blog – because what ever I go through so do they
Post radiotherapy for tongue cancer - still battling feeding issues and needed TPN to survive. Ehlers Danlos syndrome thrown into the mix and its all off kilter. trying to smile and keep going for my children and husband it can be hard though at times.
HAPPY NEW YEAR EVERYONE Well here we are almost at the 4 year mark and we all thought it would be way behind us and we would have moved on with life but unfortunately not! Here's what going on - we are now living near Aylesbury Buckinghamshire (sounds posh doesn't it ). The kids… Continue reading Update 2017 – still battling on
Well this is a milestone and a half!! First thing's first as far as I'm aware I'm cancer free!!!! I should probably stop there because that's all that matters, but, I wanted to update as to what's been going on for the last probably year since my last post. First of their children are doing… Continue reading 3 years post Radiotherapy. .
I think I've talked about this before but never at length and i feel now would be a good time to as I'm in the throws of a hypothyroid episode. What Does the Thyroid Gland Do? The thyroid (THY-royd) gland, a small butterfly-shaped gland in the front of your neck, makes thyroid hormones. Thyroid hormones… Continue reading Hypothyroid
I became a patient, a statistic, a member of a club you NEVER ask to join yet can NEVER leave. I've spoken of my depression and anxiety before, but I've never found a way to put it in to words. I'll try, once you're in the club you're playing Russian roulette with Schrödinger’s cancer, it's… Continue reading 730 days Since..
Once you have had cancer you will always be a cancer patient but there is hope.
This is something that has intrigued me for a long while. I find it interesting that you can, for example reply "ok" in a text it can be taken so may ways. OK, ie fine whatever I hate you right now!!!! OK, ie no issues, I'm happy with that thanks. OK, ie lethargic don't care… Continue reading Sensing tone in the written word
Well, this bloody radiotherapy I had has well and truly buggered me up. Currently I'm fighting off another bout of cellulitis and mouth sores and mucusitus. Needless to say, but i will say anyway, I'm in so so much pain. Imagine having salt on a ulser now make that ulser up to 4 mm wide… Continue reading Another bump in the road!!