Health

The expert patient


I think I've written about this previously,  but my GP actually called me this the other day. I was at the doctors, as I am almost weekly at the moment and my Doctor who I respect massively said "well it's easier when you have an *expert patient*" now, I know why he said this but… Continue reading The expert patient

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Not the best start to the year,onward and upwards -I say


Post radiotherapy for tongue cancer - still battling feeding issues and needed TPN to survive. Ehlers Danlos syndrome thrown into the mix and its all off kilter. trying to smile and keep going for my children and husband it can be hard though at times.

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Update 2017 – still battling on


HAPPY NEW YEAR EVERYONE Well here we are almost at the 4 year mark and we all thought it would be way behind us and we would have moved on with life but unfortunately not!   Here's what going on - we are now living near Aylesbury Buckinghamshire (sounds posh doesn't it ). The kids… Continue reading Update 2017 – still battling on

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Summer Holidays


Well its 2 weeks since we started our 'plan' of night feeds etc, it's going ok as long as I'm taking my anti sickness, so could be worse. I've not managed much in the way of mls, and 1ml is 1 calorie, here's an example of a few days feed, 450mls 600 mls 320mls and… Continue reading Summer Holidays