HAPPY NEW YEAR EVERYONE Well here we are almost at the 4 year mark and we all thought it would be way behind us and we would have moved on with life but unfortunately not! Here's what going on - we are now living near Aylesbury Buckinghamshire (sounds posh doesn't it ). The kids… Continue reading Update 2017 – still battling on
Well this is a milestone and a half!! First thing's first as far as I'm aware I'm cancer free!!!! I should probably stop there because that's all that matters, but, I wanted to update as to what's been going on for the last probably year since my last post. First of their children are doing… Continue reading 3 years post Radiotherapy. .
I think I've talked about this before but never at length and i feel now would be a good time to as I'm in the throws of a hypothyroid episode. What Does the Thyroid Gland Do? The thyroid (THY-royd) gland, a small butterfly-shaped gland in the front of your neck, makes thyroid hormones. Thyroid hormones… Continue reading Hypothyroid
I became a patient, a statistic, a member of a club you NEVER ask to join yet can NEVER leave. I've spoken of my depression and anxiety before, but I've never found a way to put it in to words. I'll try, once you're in the club you're playing Russian roulette with Schrödinger’s cancer, it's… Continue reading 730 days Since..
Once you have had cancer you will always be a cancer patient but there is hope.
This is something that has intrigued me for a long while. I find it interesting that you can, for example reply "ok" in a text it can be taken so may ways. OK, ie fine whatever I hate you right now!!!! OK, ie no issues, I'm happy with that thanks. OK, ie lethargic don't care… Continue reading Sensing tone in the written word
Well, this bloody radiotherapy I had has well and truly buggered me up. Currently I'm fighting off another bout of cellulitis and mouth sores and mucusitus. Needless to say, but i will say anyway, I'm in so so much pain. Imagine having salt on a ulser now make that ulser up to 4 mm wide… Continue reading Another bump in the road!!
Well its 2 weeks since we started our 'plan' of night feeds etc, it's going ok as long as I'm taking my anti sickness, so could be worse. I've not managed much in the way of mls, and 1ml is 1 calorie, here's an example of a few days feed, 450mls 600 mls 320mls and… Continue reading Summer Holidays
Well the start of a plan. Since my last post I stopped eating due to the pain, so when I went to the doctors he made some phone calls and was clearly very persuasive as I had my dietitian on the phone before I had even left the doctors, well nearly, I had a voice… Continue reading We have a plan….
I'm at my wit's end, I'm almost 12 months post radiotherapy and 14 most post surgery (half tongue removed and reconstructed with free flap forearm). I keep having blips, here's a few: - Auto immune reaction in mouth causing extensive ulceration. - Sickness returning on and off - I STILL have my peg - My… Continue reading 1 year post radiotherapy and struggling
This have most definitely been eventful lately, where to start. Choir, well week 2 I couldn't go as I barely had a voice, I'm too sure why but at least once a week my voice goes croaky and sometimes just disappears. Week 3 i turn up and almost instantly i regret it. Other than a… Continue reading BBQ
We are holding a BBQ to raise money for Macmillan and Cancer Research UK. On the 31st May 2014 from 2pm it's at our house in Marham, PE33 9PDD. We are wanting a big doo so if you fancy it message me at firstname.lastname@example.org. Also we are looking for raffle prizes if anyone wants to donate x… Continue reading An Invitation
Being a better person ?? Since my cancer I have had an urge, a need to make things better. I think it's the "live life to its fullest" type theory. But what is a better life? Is it being more popular having more friends ? Is it doing crazy things like sky diving ? Or… Continue reading Being a Better Person.
Wow you can really see the difference! https://www.youtube.com/watch?v=U58yXoRs6AQ&feature=youtube_gdata_player I hope that by writing this blog I can help others in similar situations take comfort in the fact that they are not alone. Please help me reach more people with my blog by sharing my posts on Twitter and Facebook. If you would like to… Continue reading My new video “Mouth Cancer Suvivor.
Well I have nearly finished my antibiotics from the hospital, and I'm feeling much much brighter. On leaving the hospital Daisy thanked my doctor "thank you, my mummy" I nearly cried it was adorable. I had so many well wishes whilst I was it really made me smile. We had tickets booked to see Russell… Continue reading Smiling and Laughing