Health, Mental Health

The mask slips….its ok not be ok… and finding positives


It's not all fun and games and sometimes my mask slips.....being strong, coping....doing so well Isn't always possible... That said sometimes you need to let go be raw be honest and say.....I'm struggling......i did this, this weekend.( I'm having a biopsy on the 25th ) *TODAY IM STRUGGLING WITH ............* There were a lot of… Continue reading The mask slips….its ok not be ok… and finding positives

Health, Post Radiotherapy, tongue cancer

Mouth care….


With many conditions that affect mouth opening or sensation, brushing your teeth can incredibly painful or physically difficult . I'm hoping by sharing the things that help me, and in turn this may help you. I've come up with some tips that work for me. It's a lot of trial and error but I have… Continue reading Mouth care….

Cancer information, Cancer Stories, Health

I need your HELP


My Etsy Shop. To Donate To those of you that have been part of my journey from the beginning you know that I enjoy writing, and yes at times my writing hasn't and hasn't been, let's say polished. I've been tired, I've been very unwell but I still wanted to get the words out there.… Continue reading I need your HELP

Health, Trigeminal Neuralgia

My Face Full of Metal!


I went to the dentist this week, something that's so so important since treatment for lots of reasons. But today's the reason was for the x-rays was to rule out a abscess or similar cause. I'm getting phantom tooth pain and pain on my good side which looks kind of like this... My pain is… Continue reading My Face Full of Metal!

Health, Uncategorized

I broke my Pelvis !


Nope this is'nt click bait - here's the story of what happened to my pelvis When i was expecting my son in 2005 I had to have weekly physiotherapy from 19-20 weeks pregnant, for SPD (symphysis pubis dysfunction)also it was known, or PGP (pelvic girdle) pain as its now known ,but there was no real… Continue reading I broke my Pelvis !

Cancer Stories, Radiotherapy

Radiation fibrosis syndrome: Late effects of Head and neck Cancers #219


So yeah.....Looks like I've got that too....yup seriously... This is something I think I've known about for a couple of years but I've got enough going on!! I couldn't be doing with anything else, but in recent months my speech has deteriorated I am unable to pronounce the 'th' sound and and a few others… Continue reading Radiation fibrosis syndrome: Late effects of Head and neck Cancers #219

Cancer Stories, Health

What does this mean? I Cannot Go There…Not Again


My yearly cancer check-up was this Sunday, it was an overflow clinic hence the weekend. I saw Mr Fasemade who’s the boss man – i.e the new Mr Moss. SOOO, where do I start, I have been aware of a white patch on my tongue for a while, it’s not sore or gross looking. It's… Continue reading What does this mean? I Cannot Go There…Not Again

My Life

Triple therapy and update!


My goodness it's been so long since I've updated and I've done quite a lot where to start. As you may know I've moved again and I'm now based in Aylesbury which means a new doctor. I had to find a new Mr Moss let's find someone I can trust and someone who would look… Continue reading Triple therapy and update!

My Life

Triple therapy and update!


My goodness it's been so long since I've updated and I've done quite a lot where to start. As you may know I've moved again and I'm now based in Aylesbury which means a new doctor. I had to find a new Mr Moss let's find someone I can trust and someone who would look… Continue reading Triple therapy and update!

Health

Scan done – just waiting for results !


So yesterday i had my scan, it was at high Wycombe hospital. the night before i was struggling with feeling stressed and found myself frantically cleaning  which id a default i go to when I'm feeling stressed and over whelmed, its a distraction techniques as I'm obviously worried for the result. Its not helped that… Continue reading Scan done – just waiting for results !

Uncategorized

Meeting my new head and neck surgeon, nerve wracking doesn’t come close! & I have a lump in my neck


Well as you all know I now live in Aylesbury area and getting to see Mr Moss is a nightmare its 2 plus hours and with my travel sickness, which is now so severe I have to carry sick bags at all times and take 2 different ant sickness meds - which sometimes work but… Continue reading Meeting my new head and neck surgeon, nerve wracking doesn’t come close! & I have a lump in my neck

Uncategorized

Mummy blog – because what ever I go through so do they


well as title says really? and I know its not just the kids it G as well. When I'm in hospital or unwell it effects the whole house which is one of the many reason I hate being in hospital, I can see the effect it is having and yet am powerless to help. There… Continue reading Mummy blog – because what ever I go through so do they

Uncategorized

Not the best start to the year,onward and upwards -I say


Post radiotherapy for tongue cancer - still battling feeding issues and needed TPN to survive. Ehlers Danlos syndrome thrown into the mix and its all off kilter. trying to smile and keep going for my children and husband it can be hard though at times.

Uncategorized

Update 2017 – still battling on


HAPPY NEW YEAR EVERYONE Well here we are almost at the 4 year mark and we all thought it would be way behind us and we would have moved on with life but unfortunately not!   Here's what going on - we are now living near Aylesbury Buckinghamshire (sounds posh doesn't it ). The kids… Continue reading Update 2017 – still battling on