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Not the best start to the year,onward and upwards -I say


Post radiotherapy for tongue cancer - still battling feeding issues and needed TPN to survive. Ehlers Danlos syndrome thrown into the mix and its all off kilter. trying to smile and keep going for my children and husband it can be hard though at times.

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Update 2017 – still battling on


HAPPY NEW YEAR EVERYONE Well here we are almost at the 4 year mark and we all thought it would be way behind us and we would have moved on with life but unfortunately not!   Here's what going on - we are now living near Aylesbury Buckinghamshire (sounds posh doesn't it ). The kids… Continue reading Update 2017 – still battling on

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730 days Since..


I became a patient, a statistic, a member of a  club you NEVER ask to join yet can NEVER leave. I've spoken of my depression and anxiety before, but I've never found a way to put it in to words. I'll try, once you're in the club you're playing Russian roulette with Schrödinger’s cancer,  it's… Continue reading 730 days Since..