If you've just been told your going to have radiotherapy - I hope this helps. I have lot of pictures to help- this is my treatment for tongue cancer - but I understand this is the general set up for most Head and Neck Cancers! This is the room and the table you lie on… Continue reading Radiotherapy Explained
Hello and thanks for reading if your here. I haven't updated in quite a while which i'm taking as a good thing as i think it means i have not needed this outlet, and perhaps we haven't had too much going on.... that's sort of true. although i am about to have a small operation… Continue reading The battle continues ….. smiling still (occasionally through gritted teeth)
I think I've written about this previously, but my GP actually called me this the other day. I was at the doctors, as I am almost weekly at the moment and my Doctor who I respect massively said "well it's easier when you have an *expert patient*" now, I know why he said this but… Continue reading The expert patient
well as title says really? and I know its not just the kids it G as well. When I'm in hospital or unwell it effects the whole house which is one of the many reason I hate being in hospital, I can see the effect it is having and yet am powerless to help. There… Continue reading Mummy blog – because what ever I go through so do they
Post radiotherapy for tongue cancer - still battling feeding issues and needed TPN to survive. Ehlers Danlos syndrome thrown into the mix and its all off kilter. trying to smile and keep going for my children and husband it can be hard though at times.
HAPPY NEW YEAR EVERYONE Well here we are almost at the 4 year mark and we all thought it would be way behind us and we would have moved on with life but unfortunately not! Here's what going on - we are now living near Aylesbury Buckinghamshire (sounds posh doesn't it ). The kids… Continue reading Update 2017 – still battling on
MY FIRST EVER POST Things were looking up !! then it all went to …… FEBRUARY 15, 2013 MY CANCER AND ME Im not sure where to start so i guess i will start with the begining of this year !!!On the 4th Jan 2013 I recall having a huge headache so bad i put… Continue reading One year since diagnosis, This is an exact copy of my first post
I haven't blogged for ever and I keep getting asked if I am ok as I haven't blogged - I am ok - in my own way ! I thought I would start with a quick run down of whats been going on I am seeing Mr Moss 4 weekly and at that appointment I… Continue reading Recovery? (arm pic but not as gross anymore)
Its been a long old time since I last blogged this is mainly down to feeling thoroughly rubbish - which I more recently I found out was due to having an infection. A week ago Friday I was rushed into hospital with a temp of 40.6 and I was totally out of it ! On arrival… Continue reading Im back !
Well friday, after seeing the palliative care doctor (not end if life, but symptom control), who added as drug to my syringe driver and gave me the ok to go home. This is Sarah the Dr I saw and she was THE kindest doctor, she was amazing and I even loved her dress (it was from… Continue reading As weak as a kitten…
I have been thinking about this a lot recently and it was dragged kicking and screaming to the surface today, when we took the children to MacDonalds and I say and cried - not coz i love the food, although i did love a chicken sandwich meal, but I cried because I cannot eat - my last actual meal was… Continue reading What my furture holds
Who would have thought it - i certainly didn't - its seemed forever away in the beginning... but I'm there - although i cannot take all the credit - i have had a lot of help. I did have some bad news this week thou, friday i has the speech and language therapist (SALT) show up ... she asked how… Continue reading HALF WAY……
I can honestly say I have only cried a handful of times since diagnosis and that includes when i was told and even after surgery ... see i don't like crying, i worry i wont stop or i will loose control. but tonight i am in a lot of pain, my back isn't liking the bed that i lay on for… Continue reading So … I cried
Same view same staff same faces, except the newbys who hold their diagnosis letter and their schedule of treatments as if its proof they should be here... its obvious many are panicing possibly imagining big cancer fighting lazer beams whereas its a big polo with beeps and clicks.. you want feel it... or see it....… Continue reading And repeat…..
So I have some amazing news. When initially diagnosed T2 N0 (tumor grade 2 /4 Nodes 0 ) but then we found the nodes and the nerves invasion ! so things were looking a bit shittier We were T2 N2 with nerve WE ARE NOW T1 N2 with nerve which was discovered by my oncologist WOOOOOOOOOOOOOOOOHOOOOOOOOOOOOOOOOOOOOOOOOOOOOO So whilst this technically doesn't… Continue reading STOP PRESS …..AMAZING NEWS