Hello and thanks for reading if your here. I haven't updated in quite a while which i'm taking as a good thing as i think it means i have not needed this outlet, and perhaps we haven't had too much going on.... that's sort of true. although i am about to have a small operation… Continue reading The battle continues ….. smiling still (occasionally through gritted teeth)
I think I've written about this previously, but my GP actually called me this the other day. I was at the doctors, as I am almost weekly at the moment and my Doctor who I respect massively said "well it's easier when you have an *expert patient*" now, I know why he said this but… Continue reading The expert patient
Post radiotherapy for tongue cancer - still battling feeding issues and needed TPN to survive. Ehlers Danlos syndrome thrown into the mix and its all off kilter. trying to smile and keep going for my children and husband it can be hard though at times.
I became a patient, a statistic, a member of a club you NEVER ask to join yet can NEVER leave. I've spoken of my depression and anxiety before, but I've never found a way to put it in to words. I'll try, once you're in the club you're playing Russian roulette with Schrödinger’s cancer, it's… Continue reading 730 days Since..
I haven't blogged for ever and I keep getting asked if I am ok as I haven't blogged - I am ok - in my own way ! I thought I would start with a quick run down of whats been going on I am seeing Mr Moss 4 weekly and at that appointment I… Continue reading Recovery? (arm pic but not as gross anymore)
Its been a long old time since I last blogged this is mainly down to feeling thoroughly rubbish - which I more recently I found out was due to having an infection. A week ago Friday I was rushed into hospital with a temp of 40.6 and I was totally out of it ! On arrival… Continue reading Im back !
It seems like ages since I have updates – I actually think its 4 days which I guess in blog terns is quite a lot. Truth be told I have mostly slept since my last blog. I mean that literally all I seem to do is sleep, one day I went for a nap at… Continue reading Still smiling – but with help (arm pic)
Well friday, after seeing the palliative care doctor (not end if life, but symptom control), who added as drug to my syringe driver and gave me the ok to go home. This is Sarah the Dr I saw and she was THE kindest doctor, she was amazing and I even loved her dress (it was from… Continue reading As weak as a kitten…
I can honestly say I have only cried a handful of times since diagnosis and that includes when i was told and even after surgery ... see i don't like crying, i worry i wont stop or i will loose control. but tonight i am in a lot of pain, my back isn't liking the bed that i lay on for… Continue reading So … I cried
So I have some amazing news. When initially diagnosed T2 N0 (tumor grade 2 /4 Nodes 0 ) but then we found the nodes and the nerves invasion ! so things were looking a bit shittier We were T2 N2 with nerve WE ARE NOW T1 N2 with nerve which was discovered by my oncologist WOOOOOOOOOOOOOOOOHOOOOOOOOOOOOOOOOOOOOOOOOOOOOO So whilst this technically doesn't… Continue reading STOP PRESS …..AMAZING NEWS
So today was the day of both my dentist appointment, and G's MRI - Dentist went fine other than one lose filling which he's gonna sort out for me next week, and G's MRI was fine he fell asleep in in the tunnel !! i sware that man can sleep anywhere - for anyone who hadn't had an… Continue reading Busy morning and back to crafting 🙂
So for a change little miss D didn't have Daddy up at 5 am it was 6.30 which is a real lie in in this house lol !!I don't think i have mentioned to to my "rubbish legs" and yes that's the medical terminology i get DLA which we use to get a car under… Continue reading A suprisingly productive day !!!
I know i am not out of the woods yet and my gut feeling is they will give me a bit of chemo - just to make sure - apparently this is fairly common for younger patients ! My moto for every day is make sure you laugh till your belly hurts - and make… Continue reading I feel extreemly lucky