If you've just been told your going to have radiotherapy - I hope this helps. I have lot of pictures to help- this is my treatment for tongue cancer - but I understand this is the general set up for most Head and Neck Cancers! This is the room and the table you lie on… Continue reading Radiotherapy Explained
THANK YOU isnt enough.... Mr Moss THANK YOU MR MOSS......FROM US ALL.
Post radiotherapy for tongue cancer - still battling feeding issues and needed TPN to survive. Ehlers Danlos syndrome thrown into the mix and its all off kilter. trying to smile and keep going for my children and husband it can be hard though at times.
HAPPY NEW YEAR EVERYONE Well here we are almost at the 4 year mark and we all thought it would be way behind us and we would have moved on with life but unfortunately not! Here's what going on - we are now living near Aylesbury Buckinghamshire (sounds posh doesn't it ). The kids… Continue reading Update 2017 – still battling on
I became a patient, a statistic, a member of a club you NEVER ask to join yet can NEVER leave. I've spoken of my depression and anxiety before, but I've never found a way to put it in to words. I'll try, once you're in the club you're playing Russian roulette with Schrödinger’s cancer, it's… Continue reading 730 days Since..
So this was yesterday ...So i lost it in the middle of Sainsbury's, G was being indecisive about something and i saw red shouting 'its not like I'm gonna bloody eat any of this, just bloody pick' with a few bleeps in there for good measure. To be honest i think its been brewing for… Continue reading Volcano Stephanie
I haven't blogged for ever and I keep getting asked if I am ok as I haven't blogged - I am ok - in my own way ! I thought I would start with a quick run down of whats been going on I am seeing Mr Moss 4 weekly and at that appointment I… Continue reading Recovery? (arm pic but not as gross anymore)
Its been a long old time since I last blogged this is mainly down to feeling thoroughly rubbish - which I more recently I found out was due to having an infection. A week ago Friday I was rushed into hospital with a temp of 40.6 and I was totally out of it ! On arrival… Continue reading Im back !
It seems like ages since I have updates – I actually think its 4 days which I guess in blog terns is quite a lot. Truth be told I have mostly slept since my last blog. I mean that literally all I seem to do is sleep, one day I went for a nap at… Continue reading Still smiling – but with help (arm pic)
Well friday, after seeing the palliative care doctor (not end if life, but symptom control), who added as drug to my syringe driver and gave me the ok to go home. This is Sarah the Dr I saw and she was THE kindest doctor, she was amazing and I even loved her dress (it was from… Continue reading As weak as a kitten…
I have been thinking about this a lot recently and it was dragged kicking and screaming to the surface today, when we took the children to MacDonalds and I say and cried - not coz i love the food, although i did love a chicken sandwich meal, but I cried because I cannot eat - my last actual meal was… Continue reading What my furture holds
Who would have thought it - i certainly didn't - its seemed forever away in the beginning... but I'm there - although i cannot take all the credit - i have had a lot of help. I did have some bad news this week thou, friday i has the speech and language therapist (SALT) show up ... she asked how… Continue reading HALF WAY……
I can honestly say I have only cried a handful of times since diagnosis and that includes when i was told and even after surgery ... see i don't like crying, i worry i wont stop or i will loose control. but tonight i am in a lot of pain, my back isn't liking the bed that i lay on for… Continue reading So … I cried
Same view same staff same faces, except the newbys who hold their diagnosis letter and their schedule of treatments as if its proof they should be here... its obvious many are panicing possibly imagining big cancer fighting lazer beams whereas its a big polo with beeps and clicks.. you want feel it... or see it....… Continue reading And repeat…..
So I have some amazing news. When initially diagnosed T2 N0 (tumor grade 2 /4 Nodes 0 ) but then we found the nodes and the nerves invasion ! so things were looking a bit shittier We were T2 N2 with nerve WE ARE NOW T1 N2 with nerve which was discovered by my oncologist WOOOOOOOOOOOOOOOOHOOOOOOOOOOOOOOOOOOOOOOOOOOOOO So whilst this technically doesn't… Continue reading STOP PRESS …..AMAZING NEWS