If you've just been told your going to have radiotherapy - I hope this helps. I have lot of pictures to help- this is my treatment for tongue cancer - but I understand this is the general set up for most Head and Neck Cancers! This is the room and the table you lie on… Continue reading Radiotherapy Explained
Having a chronic illness or two it can be impossible to be positive and happy - or so you would think - this is how I see it - how I try and stay positive - how I keep smiling through pain and hard times
This post isn’t about me it’s about family and how they are affected by my ill health and my hospital stays. It’s something I’ve mentioned but recently the effects have been bad have been BAD. As you know I’ve just been discharged after being in hospital for eight weeks. My husband has had to keep… Continue reading It’s not always about the patient !
Hello and thanks for reading if your here. I haven't updated in quite a while which i'm taking as a good thing as i think it means i have not needed this outlet, and perhaps we haven't had too much going on.... that's sort of true. although i am about to have a small operation… Continue reading The battle continues ….. smiling still (occasionally through gritted teeth)
I think I've written about this previously, but my GP actually called me this the other day. I was at the doctors, as I am almost weekly at the moment and my Doctor who I respect massively said "well it's easier when you have an *expert patient*" now, I know why he said this but… Continue reading The expert patient
well as title says really? and I know its not just the kids it G as well. When I'm in hospital or unwell it effects the whole house which is one of the many reason I hate being in hospital, I can see the effect it is having and yet am powerless to help. There… Continue reading Mummy blog – because what ever I go through so do they
Post radiotherapy for tongue cancer - still battling feeding issues and needed TPN to survive. Ehlers Danlos syndrome thrown into the mix and its all off kilter. trying to smile and keep going for my children and husband it can be hard though at times.
This is something that has intrigued me for a long while. I find it interesting that you can, for example reply "ok" in a text it can be taken so may ways. OK, ie fine whatever I hate you right now!!!! OK, ie no issues, I'm happy with that thanks. OK, ie lethargic don't care… Continue reading Sensing tone in the written word
Well, this bloody radiotherapy I had has well and truly buggered me up. Currently I'm fighting off another bout of cellulitis and mouth sores and mucusitus. Needless to say, but i will say anyway, I'm in so so much pain. Imagine having salt on a ulser now make that ulser up to 4 mm wide… Continue reading Another bump in the road!!
So this was yesterday ...So i lost it in the middle of Sainsbury's, G was being indecisive about something and i saw red shouting 'its not like I'm gonna bloody eat any of this, just bloody pick' with a few bleeps in there for good measure. To be honest i think its been brewing for… Continue reading Volcano Stephanie
I haven't blogged for ever and I keep getting asked if I am ok as I haven't blogged - I am ok - in my own way ! I thought I would start with a quick run down of whats been going on I am seeing Mr Moss 4 weekly and at that appointment I… Continue reading Recovery? (arm pic but not as gross anymore)
Its been a long old time since I last blogged this is mainly down to feeling thoroughly rubbish - which I more recently I found out was due to having an infection. A week ago Friday I was rushed into hospital with a temp of 40.6 and I was totally out of it ! On arrival… Continue reading Im back !
Well friday, after seeing the palliative care doctor (not end if life, but symptom control), who added as drug to my syringe driver and gave me the ok to go home. This is Sarah the Dr I saw and she was THE kindest doctor, she was amazing and I even loved her dress (it was from… Continue reading As weak as a kitten…
Who would have thought it - i certainly didn't - its seemed forever away in the beginning... but I'm there - although i cannot take all the credit - i have had a lot of help. I did have some bad news this week thou, friday i has the speech and language therapist (SALT) show up ... she asked how… Continue reading HALF WAY……
I can honestly say I have only cried a handful of times since diagnosis and that includes when i was told and even after surgery ... see i don't like crying, i worry i wont stop or i will loose control. but tonight i am in a lot of pain, my back isn't liking the bed that i lay on for… Continue reading So … I cried