After my biopsy results which were good not great but good I should be happy… ..But im feeling a rain cloud over my head… yes of course I'm pleased but my internal dialogue is saying things like… Ticking time bombby the time we know it will be too late*just remove the whole flap (huge operation… Continue reading Why I will never be truly happy.
So yesterday i had my scan, it was at high Wycombe hospital. the night before i was struggling with feeling stressed and found myself frantically cleaning which id a default i go to when I'm feeling stressed and over whelmed, its a distraction techniques as I'm obviously worried for the result. Its not helped that… Continue reading Scan done – just waiting for results !
Well as you all know I now live in Aylesbury area and getting to see Mr Moss is a nightmare its 2 plus hours and with my travel sickness, which is now so severe I have to carry sick bags at all times and take 2 different ant sickness meds - which sometimes work but… Continue reading Meeting my new head and neck surgeon, nerve wracking doesn’t come close! & I have a lump in my neck
well as title says really? and I know its not just the kids it G as well. When I'm in hospital or unwell it effects the whole house which is one of the many reason I hate being in hospital, I can see the effect it is having and yet am powerless to help. There… Continue reading Mummy blog – because what ever I go through so do they
Post radiotherapy for tongue cancer - still battling feeding issues and needed TPN to survive. Ehlers Danlos syndrome thrown into the mix and its all off kilter. trying to smile and keep going for my children and husband it can be hard though at times.
HAPPY NEW YEAR EVERYONE Well here we are almost at the 4 year mark and we all thought it would be way behind us and we would have moved on with life but unfortunately not! Here's what going on - we are now living near Aylesbury Buckinghamshire (sounds posh doesn't it ). The kids… Continue reading Update 2017 – still battling on
Well this is a milestone and a half!! First thing's first as far as I'm aware I'm cancer free!!!! I should probably stop there because that's all that matters, but, I wanted to update as to what's been going on for the last probably year since my last post. First of their children are doing… Continue reading 3 years post Radiotherapy. .
I think I've talked about this before but never at length and i feel now would be a good time to as I'm in the throws of a hypothyroid episode. What Does the Thyroid Gland Do? The thyroid (THY-royd) gland, a small butterfly-shaped gland in the front of your neck, makes thyroid hormones. Thyroid hormones… Continue reading Hypothyroid
I became a patient, a statistic, a member of a club you NEVER ask to join yet can NEVER leave. I've spoken of my depression and anxiety before, but I've never found a way to put it in to words. I'll try, once you're in the club you're playing Russian roulette with Schrödinger’s cancer, it's… Continue reading 730 days Since..
Once you have had cancer you will always be a cancer patient but there is hope.
This is something that has intrigued me for a long while. I find it interesting that you can, for example reply "ok" in a text it can be taken so may ways. OK, ie fine whatever I hate you right now!!!! OK, ie no issues, I'm happy with that thanks. OK, ie lethargic don't care… Continue reading Sensing tone in the written word
Well, this bloody radiotherapy I had has well and truly buggered me up. Currently I'm fighting off another bout of cellulitis and mouth sores and mucusitus. Needless to say, but i will say anyway, I'm in so so much pain. Imagine having salt on a ulser now make that ulser up to 4 mm wide… Continue reading Another bump in the road!!
Well its 2 weeks since we started our 'plan' of night feeds etc, it's going ok as long as I'm taking my anti sickness, so could be worse. I've not managed much in the way of mls, and 1ml is 1 calorie, here's an example of a few days feed, 450mls 600 mls 320mls and… Continue reading Summer Holidays
Well the start of a plan. Since my last post I stopped eating due to the pain, so when I went to the doctors he made some phone calls and was clearly very persuasive as I had my dietitian on the phone before I had even left the doctors, well nearly, I had a voice… Continue reading We have a plan….
I'm at my wit's end, I'm almost 12 months post radiotherapy and 14 most post surgery (half tongue removed and reconstructed with free flap forearm). I keep having blips, here's a few: - Auto immune reaction in mouth causing extensive ulceration. - Sickness returning on and off - I STILL have my peg - My… Continue reading 1 year post radiotherapy and struggling