After my biopsy results which were good not great but good I should be happy… ..But im feeling a rain cloud over my head… yes of course I'm pleased but my internal dialogue is saying things like… Ticking time bombby the time we know it will be too late*just remove the whole flap (huge operation… Continue reading Why I will never be truly happy.
Having a chronic illness or two it can be impossible to be positive and happy - or so you would think - this is how I see it - how I try and stay positive - how I keep smiling through pain and hard times
Hello everyone, thank you for finding my blog if you're new here. I'm Stephanie I have Ehlers-Danlos syndrome and I have a history of tongue cancer which was treated successfully but unfortunately left me with several legacies. I have a feeding tube and I have have issues swallowing speaking. I also have a funky sounding… Continue reading I fell Down the Stairs … #218
It's no secret that I have bladder issues but for obvious reasons I have chosen not to mention my bowels - but you know what?! EVERYBODY POO's and farts! IT'S A FACT and being able to speak to your doctor about this without being embarrassed is hard - but necessary at times. So lets rewind… Continue reading Taboo… surgery – way TMI – Prolapse Surgery #216
Those that have followed me blog will know I have a plethora of health issues from having my pelvis split whilst pregnant with my son, needing surgery to put metal plates in it to pull then back into place, to slow healing from surgeries, bladder issues, prolapses, dislocations and a subarachnoid spinal cyst and that’s… Continue reading Joining the dots … Ehlers Danlos Syndrome EDS #211