After my biopsy results which were good not great but good I should be happy… ..But im feeling a rain cloud over my head… yes of course I'm pleased but my internal dialogue is saying things like… Ticking time bombby the time we know it will be too late*just remove the whole flap (huge operation… Continue reading Why I will never be truly happy.
Your face My initial facial palsy Your face is who you are - and if this changes, which is often the case in head and neck cancers, you're left with not feeling like yourself - you feel unable to identify with the person looking back at you from the mirror. For me the worst was… Continue reading Physical and psychological effects of Head and neck cancers #212
Hello and thanks for reading if your here. I haven't updated in quite a while which i'm taking as a good thing as i think it means i have not needed this outlet, and perhaps we haven't had too much going on.... that's sort of true. although i am about to have a small operation… Continue reading The battle continues ….. smiling still (occasionally through gritted teeth)
I think I've written about this previously, but my GP actually called me this the other day. I was at the doctors, as I am almost weekly at the moment and my Doctor who I respect massively said "well it's easier when you have an *expert patient*" now, I know why he said this but… Continue reading The expert patient
Post radiotherapy for tongue cancer - still battling feeding issues and needed TPN to survive. Ehlers Danlos syndrome thrown into the mix and its all off kilter. trying to smile and keep going for my children and husband it can be hard though at times.
HAPPY NEW YEAR EVERYONE Well here we are almost at the 4 year mark and we all thought it would be way behind us and we would have moved on with life but unfortunately not! Here's what going on - we are now living near Aylesbury Buckinghamshire (sounds posh doesn't it ). The kids… Continue reading Update 2017 – still battling on
So we are at the end of half term, we haven't done anything too exciting but its been good, well other than THE worst mummy fail ever, essentially I told my 8 year old boy he could not wear deodorant because he hasn't started his periods, in my defence I meant to say puberty. Then… Continue reading Half term part 2
I haven't blogged for ever and I keep getting asked if I am ok as I haven't blogged - I am ok - in my own way ! I thought I would start with a quick run down of whats been going on I am seeing Mr Moss 4 weekly and at that appointment I… Continue reading Recovery? (arm pic but not as gross anymore)
Its been a long old time since I last blogged this is mainly down to feeling thoroughly rubbish - which I more recently I found out was due to having an infection. A week ago Friday I was rushed into hospital with a temp of 40.6 and I was totally out of it ! On arrival… Continue reading Im back !
It seems like ages since I have updates – I actually think its 4 days which I guess in blog terns is quite a lot. Truth be told I have mostly slept since my last blog. I mean that literally all I seem to do is sleep, one day I went for a nap at… Continue reading Still smiling – but with help (arm pic)
Well friday, after seeing the palliative care doctor (not end if life, but symptom control), who added as drug to my syringe driver and gave me the ok to go home. This is Sarah the Dr I saw and she was THE kindest doctor, she was amazing and I even loved her dress (it was from… Continue reading As weak as a kitten…
I have been thinking about this a lot recently and it was dragged kicking and screaming to the surface today, when we took the children to MacDonalds and I say and cried - not coz i love the food, although i did love a chicken sandwich meal, but I cried because I cannot eat - my last actual meal was… Continue reading What my furture holds