My Life, Parenting

Parent Guilt


Parent guilt is real ! I'm in a position that I could write this from several angles - we have the disabled mum - we have the chronically sick mum - and we have the tongue cancer mum. Any one of those would have been enough for a adult to deal with let along a… Continue reading Parent Guilt

Cancer information, Cancer Stories, Health

Saved my life #223


THANK YOU isnt enough.... Mr Moss THANK YOU MR MOSS......FROM US ALL.

Cancer Stories, Health

You’re so positive….how do you do it? #220


Having a chronic illness or two it can be impossible to be positive and happy - or so you would think - this is how I see it - how I try and stay positive - how I keep smiling through pain and hard times

Health, My Life

Portugal Holiday – The Ups and Downs #217


Hi guys I hope everyone's doing well. I havent the in the blog-post in quite while, but I really wanted to share some things with you.. some super great and some pretty crappy..I'm writing this from Portugal I'm on holiday with my husband and children as well as my parents and my dad's mum, my… Continue reading Portugal Holiday – The Ups and Downs #217

ehlers danlos syndrome

Joining the dots … Ehlers Danlos Syndrome EDS #211


Those that have followed me blog will know I have a plethora of health issues from having my pelvis split whilst pregnant with my son, needing surgery to put metal plates in it to pull then back into place, to slow healing from surgeries, bladder issues, prolapses, dislocations and a subarachnoid spinal cyst and that’s… Continue reading Joining the dots … Ehlers Danlos Syndrome EDS #211

Cancer Stories

It’s not always about the patient !


This post isn’t about me it’s about family and how they are affected by my ill health and my hospital stays. It’s something I’ve mentioned but recently the effects have been bad have been BAD. As you know I’ve just been discharged after being in hospital for eight weeks. My husband has had to keep… Continue reading It’s not always about the patient !

Health

Scan done – just waiting for results !


So yesterday i had my scan, it was at high Wycombe hospital. the night before i was struggling with feeling stressed and found myself frantically cleaning  which id a default i go to when I'm feeling stressed and over whelmed, its a distraction techniques as I'm obviously worried for the result. Its not helped that… Continue reading Scan done – just waiting for results !

Uncategorized

Meeting my new head and neck surgeon, nerve wracking doesn’t come close! & I have a lump in my neck


Well as you all know I now live in Aylesbury area and getting to see Mr Moss is a nightmare its 2 plus hours and with my travel sickness, which is now so severe I have to carry sick bags at all times and take 2 different ant sickness meds - which sometimes work but… Continue reading Meeting my new head and neck surgeon, nerve wracking doesn’t come close! & I have a lump in my neck

Uncategorized

Mummy blog – because what ever I go through so do they


well as title says really? and I know its not just the kids it G as well. When I'm in hospital or unwell it effects the whole house which is one of the many reason I hate being in hospital, I can see the effect it is having and yet am powerless to help. There… Continue reading Mummy blog – because what ever I go through so do they

Uncategorized

Not the best start to the year,onward and upwards -I say


Post radiotherapy for tongue cancer - still battling feeding issues and needed TPN to survive. Ehlers Danlos syndrome thrown into the mix and its all off kilter. trying to smile and keep going for my children and husband it can be hard though at times.

Uncategorized

Update 2017 – still battling on


HAPPY NEW YEAR EVERYONE Well here we are almost at the 4 year mark and we all thought it would be way behind us and we would have moved on with life but unfortunately not!   Here's what going on - we are now living near Aylesbury Buckinghamshire (sounds posh doesn't it ). The kids… Continue reading Update 2017 – still battling on

Uncategorized

3 years post Radiotherapy. .


Well this is a milestone and a half!! First thing's first as far as I'm aware I'm cancer free!!!! I should probably stop there because that's all that matters, but, I wanted to update as to what's been going on for the last probably year since my last post. First of their children are doing… Continue reading 3 years post Radiotherapy. .

Uncategorized

Hypothyroid


I think I've talked about this before but never at length and i feel now would be a good time to as I'm in the throws of a hypothyroid episode.  What Does the Thyroid Gland Do? The thyroid (THY-royd) gland, a small butterfly-shaped gland in the front of your neck, makes thyroid hormones. Thyroid hormones… Continue reading Hypothyroid

Uncategorized

730 days Since..


I became a patient, a statistic, a member of a  club you NEVER ask to join yet can NEVER leave. I've spoken of my depression and anxiety before, but I've never found a way to put it in to words. I'll try, once you're in the club you're playing Russian roulette with Schrödinger’s cancer,  it's… Continue reading 730 days Since..

Uncategorized

It’s been a while


Once you have had cancer you will always be a cancer patient but there is hope.