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Not the best start to the year,onward and upwards -I say


Post radiotherapy for tongue cancer - still battling feeding issues and needed TPN to survive. Ehlers Danlos syndrome thrown into the mix and its all off kilter. trying to smile and keep going for my children and husband it can be hard though at times.

Surgery pictures, Uncategorized

Still smiling – but with help (arm pic)


It seems like ages since I have updates – I actually think its 4 days which I guess in blog terns is quite a lot. Truth be told I have mostly slept since my last blog. I mean that literally all I seem to do is sleep, one day I went for a nap at… Continue reading Still smiling – but with help (arm pic)

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As weak as a kitten…


Well friday, after seeing the palliative care doctor (not end if life, but symptom control), who added as drug to my syringe driver and gave me the ok to go home. This is Sarah the Dr  I saw and she was THE kindest doctor, she was amazing and I even loved her dress (it was from… Continue reading As weak as a kitten…

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HALF WAY……


Who would have thought it - i certainly didn't - its seemed forever away in the beginning... but I'm there - although i cannot take all the credit - i have had a lot  of help.   I did have some bad news this week thou, friday i has the speech and language therapist (SALT) show up ... she asked how… Continue reading HALF WAY……

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So … I cried


I can honestly say I have only cried a handful of times since diagnosis and that includes when i was told and even after surgery ... see i don't like crying, i worry i wont stop or i will loose control. but tonight i am in a lot of pain, my back isn't liking the bed that i lay on for… Continue reading So … I cried

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And repeat…..


Same view same staff same faces, except the newbys who hold their diagnosis letter and their schedule of treatments as if its proof they should be here... its  obvious many are panicing possibly imagining big cancer fighting lazer beams whereas its a big polo with beeps and clicks.. you want feel it... or see it....… Continue reading And repeat…..