After my biopsy results which were good not great but good I should be happy… ..But im feeling a rain cloud over my head… yes of course I'm pleased but my internal dialogue is saying things like… Ticking time bombby the time we know it will be too late*just remove the whole flap (huge operation… Continue reading Why I will never be truly happy.
Short Video to raise awareness
THANK YOU isnt enough.... Mr Moss THANK YOU MR MOSS......FROM US ALL.
I asked some head and neck patients how they were affected socially emotionally and physically - short and longer term.
A very emotional story line which was played so very well by a fantastic actress and actor
Having a chronic illness or two it can be impossible to be positive and happy - or so you would think - this is how I see it - how I try and stay positive - how I keep smiling through pain and hard times
So yeah.....Looks like I've got that too....yup seriously... This is something I think I've known about for a couple of years but I've got enough going on!! I couldn't be doing with anything else, but in recent months my speech has deteriorated I am unable to pronounce the 'th' sound and and a few others… Continue reading Radiation fibrosis syndrome: Late effects of Head and neck Cancers #219
Hello everyone, thank you for finding my blog if you're new here. I'm Stephanie I have Ehlers-Danlos syndrome and I have a history of tongue cancer which was treated successfully but unfortunately left me with several legacies. I have a feeding tube and I have have issues swallowing speaking. I also have a funky sounding… Continue reading I fell Down the Stairs … #218
Hi guys I hope everyone's doing well. I havent the in the blog-post in quite while, but I really wanted to share some things with you.. some super great and some pretty crappy..I'm writing this from Portugal I'm on holiday with my husband and children as well as my parents and my dad's mum, my… Continue reading Portugal Holiday – The Ups and Downs #217
My yearly cancer check-up was this Sunday, it was an overflow clinic hence the weekend. I saw Mr Fasemade who’s the boss man – i.e the new Mr Moss. SOOO, where do I start, I have been aware of a white patch on my tongue for a while, it’s not sore or gross looking. It's… Continue reading What does this mean? I Cannot Go There…Not Again
This post isn’t about me it’s about family and how they are affected by my ill health and my hospital stays. It’s something I’ve mentioned but recently the effects have been bad have been BAD. As you know I’ve just been discharged after being in hospital for eight weeks. My husband has had to keep… Continue reading It’s not always about the patient !
Hello and thanks for reading if your here. I haven't updated in quite a while which i'm taking as a good thing as i think it means i have not needed this outlet, and perhaps we haven't had too much going on.... that's sort of true. although i am about to have a small operation… Continue reading The battle continues ….. smiling still (occasionally through gritted teeth)
So we are at the end of half term, we haven't done anything too exciting but its been good, well other than THE worst mummy fail ever, essentially I told my 8 year old boy he could not wear deodorant because he hasn't started his periods, in my defence I meant to say puberty. Then… Continue reading Half term part 2
MY FIRST EVER POST Things were looking up !! then it all went to …… FEBRUARY 15, 2013 MY CANCER AND ME Im not sure where to start so i guess i will start with the begining of this year !!!On the 4th Jan 2013 I recall having a huge headache so bad i put… Continue reading One year since diagnosis, This is an exact copy of my first post