Where it all began – starting from the beginning! . My story


Diagnosed with tongue cancer! (Fri, 15 Feb 2013 19:07:54)

I’m not sure where to start so I guess I will start with the beginning of this year!!! On the 4th Jan 2013 I recall having a huge headache so bad I put D down for her nap early and had a lie down! I thought I was a migraine which was strange as I haven’t had one of those in years – but hey nothing to worry about??

The next day was my birthday and whilst I felt shocking my head still banging and now a new and weird symptom, half, exactly half of my tongue was numb I just plodded on, by the Sunday I knew I had to see a doc and it had to be that day, so off I went to the out of hours service in Peterborough and was rather surprised to be seen straight away, but just thought it was a bit of a bonus. I was in there for what felt like ages and she said I think you have had a TIA .. a which is a mini stroke and ordered me to go to PCH (the local hospital ) I don’t think they realised I was driving but anyways I drove there not realising how seriously they were taking things, well not until I was met at the door of AnE by a lady who introduced herself as the “specialist stoke nurse” bloody brilliant I thought this is all I need !! but I also thought; im far too young and I have so much go wrong with my body so far it wont be that or anything serious (doh)

While there I phoned my parents and asked that they come up (25 mins away) as I needed someone to keep an eye on the children while I had scans etc and I didn’t want to phone hubby who was on guard duty (hes military)– they came but called hubby anyways !! I was less than impressed – I mean of course I was going to call him but I didn’t want him unnecessarily worried and rushing away from work when my parents in theory could just help out for a while. Well that was my logic ! Anyways they showed up got kids and were asked to leave by a doc as G arrived at around the same time ! (this pissed them off somewhat I think ) The scans were inconclusive and I was told it was probably a TIA and I was referred to a neurology – In the mean time I really struggled to eat and joked about being on the best diet ever !!! – I had lost over a stone in less than a month !! (although I can afford to loose another 3 before I will worry too much) – also I kept biting my tongue and nowI had a weird bump on my tongue which I initially thought was frrom biting but I goggled it, and, google diagnosed tongue cancer 50% survival rate!!! That was it I was convinced I had the neurology appointment  on the 24th Jan – I told her I think I have tongue cancer !! and that I am a smoker so deserve it but didn’t want to die until my daughter was old enough to remember me !!  (that might sound a bit of a weird way to look at it but she wasn’t even 2 yet).She refered me to the head and neck unit at PCH who I saw on the 5/2/13 I was told it was probably nothing just where I had bitten my tongue but the would biopsy !! which they did a few days later !!

On the 13th for my results, and knew it was VERY BAD when they insisted G come in with me, I had said no hes fine the kids are on one – they insisted !!! “so you know we took the biopsy? Well we have had the results, and well you thought it was cancer and we have found cancer ” my immediate reaction was “GET MY KIDS OUT OF HERE I DO NOT WANT THEM HEARING THIS” THE NEXT 10 MINUTES WAS A BLUR I was given forms leaflets and told its like skin cancer but on the tongue and we wouldn’t know more until we had more tests done …

THEN THE TWIST !!!!  17 2013-02-15 19:07:54 2013-02-15 19:07:54 open open things-were-looking-up-then-it-all-went-to publish 0 0 post  0 cancer suvivor diagnosis dr Google head and neck cancer mouth cancer Mr Moss Peterborough City Hospital tongue cancer

Cancer, realisation of diagnosis. / Fri, 15 Feb 2013 19:19:06

 14th Feb – for most a mushy loved up day – for me a day of realisation, a day of every emotion I have ever felt – I would be laughing and crying at the same time while texting G telling him he was a bleep bleep for not being there / here for me and for being at work !! He came home at 5.20 I had been a good little wifee and dinner was done but, as was now the norm I hadnt cooked for me, – well theres no point I cant bloody eat it !!!  We talked and relaxed for a bit but it certainly didn’t feel romantic !! Add a whopping argument with my mother who I told needed to “cut the umbilical ” with my 17 year old sister who is her shaddow – to which she replied ditto, meaning me – I had just told her I have cancer !!!!! but this is the same lady who recently said “I have my own stuff going on and don’t need yours, its not like I am your next of kin !!! ” no your only my mother !! needless to say I am now done. I was getting ready for bed that night and G said, whats that – looking ay my breast !!! It was a misshapen breast (not in a gustin way ) it just want right!?  and that’s when I found a lump !!!!! 

So I now have my own specialist nurse !!!  https://mycancerandme.me/2013/02/15/so-I-now-have-my-own-specialist-nurse/ Fri, 15 Feb 2013 20:03:57 +0000 mycancerandme https://mycancerandme.wordpress.com/?p=23  Who I call first thing – leaving a message saying – you know you told me I have cancer, well I now have a lump in my boob !! She calls back and says she will speak to doctor and call again !! Well she calls again and we are to go in at 12.30 to see doc – D at school K on way back from sleep over so we charge his tablet so he can play – I get some sewing done (I will bore you another time with all of my sewing shit lol ) We get to appt and I strip off and I don’t even need to tell hime which boob – he can tell !!! he checks the “good boob” then spends ages on the other one. We need a biopsey ASAP I will call them and they will call you – its the rapid something breast something !!  All I could thing of was boob shaped super hero’s !!!! So I started laughing I said this is seriously shit … I have had, I start to list SPD (condition which makes pelvis seperate during pregnancy) but coz it was me I had it so severley I have a metal pelvis !! now. MRSA in the wound from that operation which burst open ! I was literally saved by the nicest woman on the planet called Julie a friend and nurse “I must call her no I think of it”

 DONT PANIC YET !!!!!  https://mycancerandme.me/2013/02/15/don’t-panic-yet/ Fri, 15 Feb 2013 20:36:39 So, g let me sleep till 11 today which was ace because I was up a lot in the night with pain buuuuut I got downstairs to find a parcel which said….. fragile. Open immediately lol It was a huge chocolate muffin in a georgous brigh red shiney box !!! This is from a friend who I have known for 8 years or more, she ace I mean I havent seen her in maybe 5 years but we are there for each other…. I guess I might come clean here, not so long ago her hubby was away she had a new baby and 2 very poorly children j and l (between us j and l look identical even though not twins and I cannit tell them appart in pictures lol shhhhhhh) anyways. Her hubby was away 2 kids on oxygen she was in a pickle… shes up in Scotland so I couldn’t be there so it was me who called the padre and welfare. ! Sorry babes it seemed the right thing to do and it did help … I think… Moving on I might not be able to eat muffin coz of my stupid mouth but plan to try very hard lol Oh and MIL coming monday for the week…….. how nice is that….. so far 4 appts next week Still smiling xxx 

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