Embarrassing post

So where do I start, I was discharged from hospital following the Peg change and promptly bounced back in hospital with a new issue, albeit one I’d forseen and have a personal embarrassing problem but I’m not one to shy away so here goes.

I’ve mentioned before that I Self catheterise and that’s kind of normality for me and I can practally do it in my sleep and it’s no problems BUT 11th of this month, I did it and when i removed the cath I has a gush of red blood which isn’t right isn’t supposed to be there and scared me a little to be honest I told the doctor’s because I was in hospital at the time, and they says you’ve just scratched yourself don’t give it a second thought so I didn’t but things got worse it became more difficult to self catheterise and it got to the point that I couldn’t. And if you get to the point where you can’t pee or catheterise, the only option is to go to the hospital.

Knowing full well I was going to have a complete fucking stranger examine my foof not something I was looking forward to, to put it mildly. So there I am legs akimbo they’re trying to catherterise me it’s not happening I told them that I catherterise with, what we call a size 8 French which essentially is a infant sized due to my my ongoing problems. They then have to speak pediatrics and the nicu to see if they can find a 6 french which is unheard of so with a lot of swearing and a lot of tears we managed to catherterise me.

I’m thinking at this point it’s a short term thing little did I know what was to come. I’m giving pain relief and then transfer to the surgical assessment unit and very shortly after I’m told that im being transferred again but this time by ambulance to High Wycombe hospital.

On arrival I was met by some super kind nurses one, V is amazing and moves a million miles an hour but it’s such a caring lovely lady. The doctors were waiting for me on arrival. I see the doctors. and then they drop the bomb shell. My urethra which is your pee tube is so damaged or injured at this time that without the catheter I would not be able to pee and without the cath said there’s a chance that it could heal closed! which is not what we want! They cant even operate to try and *fix* the issue because the tissues become friable.

So have keep it, which involves having to keep a bag of piss straped to my leg at all times! And I have to do this for the next month min but realistically long term. I’ve been advised that given the problems that actually occurred, and given my history and (horrible medical term other medical shite) co-morbidities realistically I need to be looking at a suprapubic catheter which means kind of like a peg for your bladder, in that its external tube on the front of the stomach, obviously lower down that you can either attach a bag or use flip-flo and empty as and when, and the benefits of that is catheters cause infections not using a catheter for me with cause retention and or infections and or other problems.

So I’m damned if I do and damned if I don’t. General aim… to not get infections and to get surgery ASAP !

1 thought on “Embarrassing post”

  1. Kind comment…..
    thank you
    I hope your journey home was reasonably uneventful. You are such an amazing lady…..with such a positive outlook on life where others would have given up the challenge……a true inspiration. Will continue to move about at high speed and eat my carrots. Bet those beautiful children will enjoy group hug tonight . Leep up the good work. V. x


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