anxiety, cancer, cures, dehydrated, depression, disabled mummy, exhausted, head and neck cancer, hemiglossectomy, hospital, hypothyroid, infection, late effects of head and neck cancers, melanoma, mouth cancer, MRSA, PEG, PEG feeding., Radiotherapy, side effects of radiotherapy, surgery, suvivor, swallow, tiredness, tongue cancer, treatment, Whats radiotherapy like
I’m still here plodding on, I’ve been struggling with my depression and a few infections but otherwise good.
Recently I’ve been doing a lot of reading about head and neck cancers, the one I had along with others including melanoma as I have a friend who has terminal cancer. Knowledge is power right?!!
I’ve obviously seen the *eat this berry and it will cure cancer* blurb and the *it’s the pharmaceutical companies causing cancer so they can make money*. I give those theories as much credit as I do the *drink your own urine to turn you into a unicorn who poo’s rainbows and skittles* . My next post will be more about what I’ve been reading.
There’s something many people don’t realise, once you have had cancer you’re a ‘cancer patient’ for life, if you were to go to hospital for something completely unrelated you will have to explain about your cancer and treatment. You will see your oncologist/ specialist every 4 weeks for a year then 6 weeks for a year then 8 weeks and so on, although I’m sure it would be different for different cancers and treatments etc. I guess what I’m saying is, moving on, forgetting about it. Not that you can forget.
Like many head and neck cancer patients I have lost a lot. I used to enjoy eating (I was fat) and loved date night with my hubby – we used to love a Indonesian restaurant. I used to laugh, I used to have friends (this should not be taken as a “I must see Steph now coz I had forgotten she existed before”. I know I’m guilty of pushing people away. I struggle with anxiety and what people may think, and hate adding stress to people, that’s something I worry about. For example if I see on Facebook that someone’s struggling with tiredness or stress at home, I wouldn’t dream of asking them to do something even if they offer. I would far rather offer to help them. That’s obviously a theoretical but you get the idea.
I still haven’t had my new peg fitted I still have my stupidly small tube that blocks all the time, it’s daft really but G has got his funny way of doing one of my meds that blocks all the time, it makes me giggle because he pulls his concentration face .
I did have a call from speech therapy but it’s not been returned as I need a break. I feel like a child at speech therapy, it’s just so uncomfortable for me. The only one I ever got on with was in Peterborough but she is more post surgery rather than 2 years, and my speech is good most of the time, my swallow is the same the only change is my ultra sexy new skill, if I’m drinking and look downwards my drink comes out my nose lol the kids can’t help but laugh:)☺. But in the grand scheme of things it’s no biggy.
That reminds me 13th of Feb will be the 2 year mark , since diagnosis. I’m not sure how i feel about that, the first feeling to surface when thinking about it is anger. Perhaps this date shouldn’t be marked but the date of my last radiotherapy ie cancer free should be. Hummmm I will have a think.
**I have just had a thought I’ve had a UTI for 4 weeks or more perhaps that is what’s kicking my arse atm. I’m on antibiotics again but maybe it’s that and I’ve woken up today feeling sooo much more awake. (I wrote most of this a 2 pm and I’m just finishing off now)
Any who’s I hope this isn’t too negative for my first post in a while, but as usual I just write what I’m thinking and feeling at the time i write it.
I’m still smiling 🙂 ☺
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