cancer, cellulitis, dehydrated, disabled mummy, exhausted, family, head and neck cancer, hemiglossectomy, hospital, hypothyroid, infection, late effects of head and neck cancers, mouth cancer, MRSA, mucusitus, PEG feeding., Radiotherapy, side effects of radiotherapy, surgery, suvivor, tongue cancer, treatment, weight loss, Whats radiotherapy like
Well, this bloody radiotherapy I had has well and truly buggered me up.
Currently I’m fighting off another bout of cellulitis and mouth sores and mucusitus. Needless to say, but i will say anyway, I’m in so so much pain. Imagine having salt on a ulser now make that ulser up to 4 mm wide and add 100 more (ish) and your getting close. The cellulitis thankfully looks like it’s on its way out but for some reason is more painful today. But it IS looking better. I just need to try and not get dehydrated, with my mouth being so very sore and my TMJ playing up it will not be easy but I don’t want to end up on a drip.
In the past week I’ve lost a stone in weight!! Tbh I’m pretty pleased as I was getting a bit too wobbly. See i found a silver lining. I won’t lie this has got me very very down. I’ve so much go on. Me and hubby have no real family support (before this gets anyone’s back up I’m referring to visits, yes I know ppl work etc). Although I have a great neighbour who has let Kieran hop into her car on school run when she takers her adorable 2 to the same school.
I think I’ve had so so much to deal with over the past 9 year’s and so much pain both physical and mental, i guess I’m just worn out.
Not quite smiling if I’m honest