cancer, dehydrated, disabled mummy, exhausted, head and neck cancer, hemiglossectomy, hospital, hypothyroid, infection, late effects of head and neck cancers, mouth cancer, MRSA, nausea, PEG feeding., Radiotherapy, sickness, side effects of radiotherapy, surgery, suvivor, tongue cancer, treatment, Whats radiotherapy like
Well its 2 weeks since we started our ‘plan’ of night feeds etc, it’s going ok as long as I’m taking my anti sickness, so could be worse. I’ve not managed much in the way of mls, and 1ml is 1 calorie, here’s an example of a few days feed, 450mls 600 mls 320mls and 0mls as I forgot to put it on. Also I’m supposed to have 2 to 3 of these a day on top of my night feed to attempt to bring me up to 1700 or 1800 calories a day … anyway it is what they are
Truth be told, I rarely manage the top ups, due to my almost instant nausea and sickness. So some days I’m living on 600 calories which is shite. I try to add more but I’m having severe pain as soon as I start eating, doesn’t really make you want to carry on trying to eat, thankfully it’s not every single time by at least 75%.
But the good news is my GP who incidentally is great, says this mouth pain could in theory be down to my hypothyroid, and or my vitamin and mineral deficiencies etc. So hopefully as soon as they all are back up to a healthy level we should be in a much better place. My GP is even trying to find an injectable iron supplement, as the tablets etc don’t agree with me.
In other news I’m doing pretty well, at the moment, which is a bonus especially as we have just started the summer holidays, which usually fills me with fear and dread, but as the kids get older it seems to be easier.
My poor K thought as soon as the holidays started everyone was out playing all the time?! He got himself all upset on day one and two when no one was around, so I’ve given him a project, to fill this
He can fill it with pictures, stories, descriptions of what we have been up to, anything really and it’s a nice thing for him to do in the evening once the Tasmanian devil aka D is in bed. We have a few other bits up my sleeve to keep him occupied, I will be sure to keep you in the loop.
Don’t forget I have a new blog which in time I will be filtering over to
Still smiling Mwah !!!!
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