allotment, bolus feeding, burning mouth, cancer, dehydrated, disabled mummy, exhausted, grow your own, head and neck cancer, hemiglossectomy, hospital, hypothyroid, infection, late effects of head and neck cancers, mouth cancer, MRSA, PEG feeding., Radiotherapy, sickness, side effects of radiotherapy, still smiling, surgery, suvivor, tongue cancer, treatment, Whats radiotherapy like
Well the start of a plan. Since my last post I stopped eating due to the pain, so when I went to the doctors he made some phone calls and was clearly very persuasive as I had my dietitian on the phone before I had even left the doctors, well nearly, I had a voice mail as the signal there is a bit random.
So, i use the hands free and return the call she explains that the food diary I did 2 or 3 weeks ago when I was doing really well, wasn’t quite as good as I thought it was the “highlights” were, lack of protein, deficiency in plenty of vitamins and minerals. We then moved on to me barely eating for 2 weeks then not eating for 5 or 6 days, she said I NEED to go back on the feeding pump, she knows I feed over night so it will be many hours till my feed so she says “you need to go in and do a bolus feed, NOW” It’s a good job she’s lovely.
This is what I have for bolus feeds, for top ups etc. It’s 300 kals and has lots of vitamins and minerals.
Ignore the bubbles, not that they are dangerous they would just make me feel bloated and possibly burp lol.
I haven’t done this in forever and sort of forgot a few things such as if I do a full bottle ie 2 syringes I feel sick and bloated. Anyways I rushed too as I was going to see a lady J about getting an allotment plot!! I was in such a rush the second syringe was attached As I was going around the allotment.
So as I mentioned I went to get an allotment plot as I’ve always loved growing vegetables and the opportunity was there. Here’s the vegetables I have in my garden currently.
My pumpkins ant tomatoes at the top although they have literally doubled in size since I took this picture.
Anyways I’m off to see Mr Moss in the morning. I’m hoping he can help with my pain and getting me back to eating although I know that may take a while.
Anyways I’m off to sleep as it’s 2 am.
Lots of love and hugs to everyone who’s taken the time to read this, remember smiles are contagious and can really make someone’s day.
I hope that by writing this blog I can help others in similar situations take comfort in the fact that they are not alone. Please help me reach more people with my blog by sharing my posts on Twitter and Facebook. If you would like to follow my story, please sign up to the mailing list so that you can be notified as my blog is updated. Should you wish to get in touch please feel free to use the ‘Contact Me’ page to fill in your details and I will respond to you as soon I am able. Thank you, Stephanie x