Well other than the amazingly crippling pain in my doner site…. It appears another nerve affected …
G came in he looked shattered and pale so I asked E to collect K from school and give him tea to give him a break…. He’s been looking after house driving up to 3 hours a day and making the house ok for me to live downstairs … And his back is still buggered…..
Before g came today. I saw nutricia nurse today..she’s the one who trains you how to use your feeding pump… ..
Told her I had a mentor called Oliver.(he’s a young boy who drags his pump round like it’s a rag doll, he’s never eaten so know no different it’s so funNY sometimes you just hear “stuck” when he’s tethered he’s amazing lol I met him and his mummy at Little miracles a charity in Peterborough who help families and provide activities the most amazing sensory room… for children with additional needs and disabilities. It’s an amazing place will link below)…. Sorry so i said my mentor is oliver Her face gave away instantly she knew him….. She then went on to say they will only survive so many drops and to avoid dragging it PMSL honestly I almost peed my pants. My training was fine tho it’s nice and easy to use
Anyone who knows pumps I’m now up to 60 hoping to get to 80 or 90 soon…. But I’m having to do it slowly to cope.
Anyways HOME TOMORROW………. FEELING SCARED AS HE’LL BUT YAYYYYYYYYY….
One more thing before link….. I run a support group on line have done for over a year for spouse of military personal who have a disability or additional needs. The ladies in there and my friends have been bloody amazing I’ve been honest about how I’m feeling and when low they have said such amazing things… Even a friend who lives