After my biopsy results which were good not great but good I should be happy… ..But im feeling a rain cloud over my head… yes of course I'm pleased but my internal dialogue is saying things like… Ticking time bombby the time we know it will be too late*just remove the whole flap (huge operation… Continue reading Why I will never be truly happy.
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First I'm okay, I lost my writing bug again and just couldn't find the words...will do update on me this week. FACE SHIELDS FOR THE NHS & KEY WORKERS! I feel incredibly lucky to be in the position to help, I've always had a pay it forward attitude, little things usually like £10 towards someone's… Continue reading Doing what we can…. 3d printing faceshields for Keyworkers.
A near death experience
It's not all fun and games and sometimes my mask slips.....being strong, coping....doing so well Isn't always possible... That said sometimes you need to let go be raw be honest and say.....I'm struggling......i did this, this weekend.( I'm having a biopsy on the 25th ) *TODAY IM STRUGGLING WITH ............* There were a lot of… Continue reading The mask slips….its ok not be ok… and finding positives
Parent guilt is real ! I'm in a position that I could write this from several angles - we have the disabled mum - we have the chronically sick mum - and we have the tongue cancer mum. Any one of those would have been enough for a adult to deal with let along a… Continue reading Parent Guilt
So last week I was driving home from school run, I need petrol so I pulled in to the petrol station in my local town. I parked really close to the door of the shop so for a change I decided to NOT use my crutches - I have no idea why - I just… Continue reading Drink driving…..
With many conditions that affect mouth opening or sensation, brushing your teeth can incredibly painful or physically difficult . I'm hoping by sharing the things that help me, and in turn this may help you. I've come up with some tips that work for me. It's a lot of trial and error but I have… Continue reading Mouth care….
If you've just been told your going to have radiotherapy - I hope this helps. I have lot of pictures to help- this is my treatment for tongue cancer - but I understand this is the general set up for most Head and Neck Cancers! This is the room and the table you lie on… Continue reading Radiotherapy Explained
My Etsy Shop. To Donate To those of you that have been part of my journey from the beginning you know that I enjoy writing, and yes at times my writing hasn't and hasn't been, let's say polished. I've been tired, I've been very unwell but I still wanted to get the words out there.… Continue reading I need your HELP
Short Video to raise awareness
I went to the dentist this week, something that's so so important since treatment for lots of reasons. But today's the reason was for the x-rays was to rule out a abscess or similar cause. I'm getting phantom tooth pain and pain on my good side which looks kind of like this... My pain is… Continue reading My Face Full of Metal!
THANK YOU isnt enough.... Mr Moss THANK YOU MR MOSS......FROM US ALL.
I asked some head and neck patients how they were affected socially emotionally and physically - short and longer term.
A very emotional story line which was played so very well by a fantastic actress and actor
Having a chronic illness or two it can be impossible to be positive and happy - or so you would think - this is how I see it - how I try and stay positive - how I keep smiling through pain and hard times