My Life, Parenting

Parent Guilt


Parent guilt is real ! I'm in a position that I could write this from several angles - we have the disabled mum - we have the chronically sick mum - and we have the tongue cancer mum. Any one of those would have been enough for a adult to deal with let along a… Continue reading Parent Guilt

Health, My Life

Drink driving…..


So last week I was driving home from school run, I need petrol so I pulled in to the petrol station in my local town. I parked really close to the door of the shop so for a change I decided to NOT use my crutches - I have no idea why - I just… Continue reading Drink driving…..

Health, Post Radiotherapy, tongue cancer

Mouth care….


With many conditions that affect mouth opening or sensation, brushing your teeth can incredibly painful or physically difficult . I'm hoping by sharing the things that help me, and in turn this may help you. I've come up with some tips that work for me. It's a lot of trial and error but I have… Continue reading Mouth care….

Cancer information, Radiotherapy

Radiotherapy Explained


If you've just been told your going to have radiotherapy - I hope this helps. I have lot of pictures to help- this is my treatment for tongue cancer - but I understand this is the general set up for most Head and Neck Cancers! This is the room and the table you lie on… Continue reading Radiotherapy Explained

Cancer information, Cancer Stories, Health

I need your HELP


My Etsy Shop. To Donate To those of you that have been part of my journey from the beginning you know that I enjoy writing, and yes at times my writing hasn't and hasn't been, let's say polished. I've been tired, I've been very unwell but I still wanted to get the words out there.… Continue reading I need your HELP

Health, Trigeminal Neuralgia

My Face Full of Metal!


I went to the dentist this week, something that's so so important since treatment for lots of reasons. But today's the reason was for the x-rays was to rule out a abscess or similar cause. I'm getting phantom tooth pain and pain on my good side which looks kind of like this... My pain is… Continue reading My Face Full of Metal!

Cancer information, Cancer Stories, Health

Saved my life #223


THANK YOU isnt enough.... Mr Moss THANK YOU MR MOSS......FROM US ALL.

Cancer information

Education #222


I asked some head and neck patients how they were affected socially emotionally and physically - short and longer term.

Cancer Stories, Health

You’re so positive….how do you do it? #220


Having a chronic illness or two it can be impossible to be positive and happy - or so you would think - this is how I see it - how I try and stay positive - how I keep smiling through pain and hard times

Health, Uncategorized

I broke my Pelvis !


Nope this is'nt click bait - here's the story of what happened to my pelvis When i was expecting my son in 2005 I had to have weekly physiotherapy from 19-20 weeks pregnant, for SPD (symphysis pubis dysfunction)also it was known, or PGP (pelvic girdle) pain as its now known ,but there was no real… Continue reading I broke my Pelvis !

Cancer Stories, Radiotherapy

Radiation fibrosis syndrome: Late effects of Head and neck Cancers #219


So yeah.....Looks like I've got that too....yup seriously... This is something I think I've known about for a couple of years but I've got enough going on!! I couldn't be doing with anything else, but in recent months my speech has deteriorated I am unable to pronounce the 'th' sound and and a few others… Continue reading Radiation fibrosis syndrome: Late effects of Head and neck Cancers #219

Health

I fell Down the Stairs … #218


Hello everyone, thank you for finding my blog if you're new here. I'm Stephanie I have Ehlers-Danlos syndrome and I have a history of tongue cancer which was treated successfully but unfortunately left me with several legacies. I have a feeding tube and I have have issues swallowing speaking. I also have a funky sounding… Continue reading I fell Down the Stairs … #218

Health, My Life

Portugal Holiday – The Ups and Downs #217


Hi guys I hope everyone's doing well. I havent the in the blog-post in quite while, but I really wanted to share some things with you.. some super great and some pretty crappy..I'm writing this from Portugal I'm on holiday with my husband and children as well as my parents and my dad's mum, my… Continue reading Portugal Holiday – The Ups and Downs #217