It's not all fun and games and sometimes my mask slips.....being strong, coping....doing so well Isn't always possible... That said sometimes you need to let go be raw be honest and say.....I'm struggling......i did this, this weekend.( I'm having a biopsy on the 25th ) *TODAY IM STRUGGLING WITH ............* There were a lot of… Continue reading The mask slips….its ok not be ok… and finding positives
Parent guilt is real ! I'm in a position that I could write this from several angles - we have the disabled mum - we have the chronically sick mum - and we have the tongue cancer mum. Any one of those would have been enough for a adult to deal with let along a… Continue reading Parent Guilt
So last week I was driving home from school run, I need petrol so I pulled in to the petrol station in my local town. I parked really close to the door of the shop so for a change I decided to NOT use my crutches - I have no idea why - I just… Continue reading Drink driving…..
With many conditions that affect mouth opening or sensation, brushing your teeth can incredibly painful or physically difficult . I'm hoping by sharing the things that help me, and in turn this may help you. I've come up with some tips that work for me. It's a lot of trial and error but I have… Continue reading Mouth care….
If you've just been told your going to have radiotherapy - I hope this helps. I have lot of pictures to help- this is my treatment for tongue cancer - but I understand this is the general set up for most Head and Neck Cancers! This is the room and the table you lie on… Continue reading Radiotherapy Explained
My Etsy Shop. To Donate To those of you that have been part of my journey from the beginning you know that I enjoy writing, and yes at times my writing hasn't and hasn't been, let's say polished. I've been tired, I've been very unwell but I still wanted to get the words out there.… Continue reading I need your HELP
Short Video to raise awareness
I went to the dentist this week, something that's so so important since treatment for lots of reasons. But today's the reason was for the x-rays was to rule out a abscess or similar cause. I'm getting phantom tooth pain and pain on my good side which looks kind of like this... My pain is… Continue reading My Face Full of Metal!
THANK YOU isnt enough.... Mr Moss THANK YOU MR MOSS......FROM US ALL.
I asked some head and neck patients how they were affected socially emotionally and physically - short and longer term.
A very emotional story line which was played so very well by a fantastic actress and actor
Having a chronic illness or two it can be impossible to be positive and happy - or so you would think - this is how I see it - how I try and stay positive - how I keep smiling through pain and hard times
Nope this is'nt click bait - here's the story of what happened to my pelvis When i was expecting my son in 2005 I had to have weekly physiotherapy from 19-20 weeks pregnant, for SPD (symphysis pubis dysfunction)also it was known, or PGP (pelvic girdle) pain as its now known ,but there was no real… Continue reading I broke my Pelvis !
So yeah.....Looks like I've got that too....yup seriously... This is something I think I've known about for a couple of years but I've got enough going on!! I couldn't be doing with anything else, but in recent months my speech has deteriorated I am unable to pronounce the 'th' sound and and a few others… Continue reading Radiation fibrosis syndrome: Late effects of Head and neck Cancers #219
Hello everyone, thank you for finding my blog if you're new here. I'm Stephanie I have Ehlers-Danlos syndrome and I have a history of tongue cancer which was treated successfully but unfortunately left me with several legacies. I have a feeding tube and I have have issues swallowing speaking. I also have a funky sounding… Continue reading I fell Down the Stairs … #218